Four sandwiches… She ate four sandwiches in a row, and this is something that has gone on every day since we left the hosptital. Oh, and I forgot to mention this was between the hours of 2am and 4 am.
Last night it was tortellini… at dinner she ate 3 plates of it and finished off the left over’s at 230 am. My fridge has never been opened so many times.
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| I wasn't kidding you with the sandwiches. |
There are many side effects of Dexamethasone. Its actually a steroid similar to Prednisone, but has leukemia killing traits. She takes this every day twice a day for the first 28 days. I am thankful that we are half way done the 28 day stint and things should dramatically get easier after that.
Eating has been the most noticeable. As stated above… she eats all day long, and usually by the time I've got to the fridge to get it, she changes her mind and wants something else.
Weight gain: for the first time in her existence Jaidyn has some squishy puffy cheaks, arm rolls and a little belly. To me she’s looks a lot different, to others she just looks like your average 3 year old.
Another major side effect of the drug is mood swings. A hormonal teenager who can’t control her emotions has taken over her little body. One minute she’s laughing and smiling and couldn’t be happier the next minute, sh*t hits the fan, and you better watch your back if you’re in her line of fire…
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| The slow gain of weight in her cheeks. |
Its's very rare to see Jaidyn smiling, and even harder to catch a picture of it.
Words cannot really express how trying the last couple weeks have been. More so for Jaidyn since she can’t really describe to me how she feels other than that her tummy hurts 24 hours a day. Her doctor told me the teenagers describe it as their entire body acheing and things crawling inside of them. I can only imagine her pain.
September 8th we’re done the steroids, things might get better… and this too shall pass.
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