Interim Maintenance

Jaidyn started her third phase of therapy today called Interim Maintenance.


This one lasts 56 days or so all dependant on her counts. 


Every ten days she will receive Vincristine and Methotrexate through IV. She's been having the Methotrexate through her Lumbar Punctures each week but now she receives in through IV. Each time she goes in for treatment (as long as her counts are good) they will increase the Methotrexate. If her counts are too low they either wait a few days or continue at the same dose as last week. 


Her at home medicine are minimal this phase which is none other than AWESOME. All she has to take is her antibiotics twice a day three times a week. Compared to previous months this phase should be a breeze. 


Today was a long day at the hospital though as she had her chemo as well as she had her "play therapy" appointment with a Psychologist. She was a big girl and had her appointment all by herself while I went and made some important phone calls since its been near impossible to do that around Jaidyn lately. 


One of the many reasons she's seeing the Psychologist. 


Along with the separation anxiety towards me, the regression of simple skills she once had, and her constant hysterical attacks she's been having over the last few weeks. - To name a few.


All of which she only does in my care. She's of course a perfect angel for anyone else.


I think its good though for her to talk to the Doctor about how she's feeling, going through all these changes and also great for them to be able to help me, and provide some insight and ideas on how to handle these tough situations.


I went by myself today, and probably will try to avoid doing that again for a while. At least until Jaidyn gets over these issues she's facing and doesn't "need" me as much as she thinks she does right now. I've found it near impossible to listen to the doctors and nurses when she is constantly needing me for something. So next time I'm bringing someone with me. Any volunteers? 


At the end of the day, I was exhausted, Jaidyn was exhausted so we had a nap and then crawled in my bed and watched "mommy's shows" as she calls them, for the rest of the evening. Ordered some pizza, and for the first time in a long time Jaidyn and I had an excellent night with no whining or crying, just a lot of cuddling and loves.


I miss nights like that.