Jaidyn's hospital visits that is. Today we went in for another LP which again has become quite routine. She had a bit of anxiety about getting her butterfly today so immediately the Psychologist was paged and came down to talk to us. Its amazing how fast things happen at this hospital.
My mom was with Jaidyn while she was getting her butterfly while I went and talked to the Psychologist about how things have been going so far and about how much Jaidyn really knew about her diagnosis. Had we been using the word "cancer" around her? That kind of caught me off guard and I wasn't really sure how to answer it because all we have really said was that she was sick.
The word cancer scares me, especially when I say my daughter has it.
How am I really supposed to explain to my three year old that she has cancer? So this is why next Thursday we have a special appointment with the Psychologist so she can observe Jaidyn and talk with both of us about how we are doing, and help find ways to explain things better to her. I think that this will be helpful for Jaidyn and also it will help the psychologist tell the nurses in oncology clinic the best way to make this experience positive for Jaidyn.
After the LP was done Jaidyn was silly as usual, we counted down the minutes till she can sit up. She has to lay down for an hour so the spinal fluid doesn't leak which will cause a major headache. Then Dr. Rod came for a visit and Jaidyn was extra happy to see him today. They went to the treasure chest and picked out a nice treat and much to our surprise we were done.
No blood transfusion today... her levels remained high at 109. Everyone was super happy, especially us since we didn't have to put in a full day at the hospital.
Short and sweet.
She was a happy girl leaving the hospital, so we made a quick stop at my work to visit some people and drop off some of her bracelets.
Afterwards, we had a little visit with baby Lily which was great. Jaidyn just loved taking care of her.
It's so nice seeing her so happy. Hoping her positivity keeps up for as long as possible.
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